Conversation on AMC

Living with arthrogryposis shapes everyday life in ways that are often invisible to others. This conversation is a space to talk openly about the realities of navigating the world day to day — at home, at work, socially, physically, and emotionally.

We’ll explore:

daily routines, mobility and accessibility, independence, fatigue and adaptation, relationships and identity and systems that help — and systems that don’t

Most importantly, this is a space for honest conversation, shared experience, and listening without pressure.

Open to anyone living with arthrogryposis, those connected to it through family or care, or anyone wanting to better understand lived experience.

The session will take place on Zoom and will last around one hour. We begin with a short introduction before opening the space for conversation, reflection, and discussion.

The atmosphere is intended to be relaxed, thoughtful, and welcoming rather than formal.

If this conversation resonates with you, or if you’d like to explore future collaborations, projects, or discussions around accessibility and lived experience, we’d love to continue the conversation — feel free to reach out anytime.